Showing posts with label inclusion. Show all posts
Showing posts with label inclusion. Show all posts

Wednesday, July 8, 2015

CCN Alphabet: Descriptive Language

Vocabulary is critical to language development. Without sufficient vocabulary, it is hard to understand others or to express your own ideas. We expand vocabulary by exposing children to words and their meaning. With people with complex communication needs we sometimes get stuck in focusing a lot of our effort on nouns simply because nouns represent things that we can touch or point to or match an object/symbol to.

In education, we often think of noun-related questions as the "easiest" questions as they require only "simple memorization". This noun-focused approach to teaching is known as "referential teaching". Referential teaching/questions require a specific one-word answer. These questions are sometimes referred to as "closed-ended". Referential teaching/questions require access to vocabulary that is specific to the topic that is being studied.  If a student has a communication system, this requires that the topic-specific words get programmed or added to the system at the beginning of each new unit of study. These words often have limited functional value beyond that unit of study so do not necessarily stay on the system beyond the time of the unit of study. Because they have limited  functional use, they also do not serve to increase a student's functional language skills.

Gail Vantatenhoven (2012) proposed that an alternative to a referential approach is a descriptive approach. In this approach, the vocabulary that is specific to the topic is still used but it is used by the communication partner/teacher/tutor and then concepts related to that vocabulary are talked about using high-frequency (core) vocabulary that is already available on the individual's communication system. The questions that are asked are more "open-ended" and encourage the use of common words for describing, defining, predicting, explaining, and/or comparing. This approach ensures that students can participate at pretty much any level of language development and that there is ongoing opportunity to work on language learning through the facilitating of more specific description using phrase/sentence construction, use of tense (past, present, future), use of word endings (s, ing, er, est...etc.),

Description and action words that could be used include talking about:
  • how something, someone or some place looks (pretty/ugly, straight/crooked, bright/dark,shiny/dull, neat/messy, it's color...etc.), sounds (noisy/quiet), smells/tastes (stinky, sweet, salty, hot, spicy, sour, nice...etc.) or feels (hot/cold, hard/soft, bumpy/smooth, heavy/light, sticky, fuzzy, slippery, wet/dry...etc.).
  • the quantity, size or shape of the person, place or thing: big/little, long/short, many/few, short/tall, empty/full, far/near, whole/part, all/some/none
  • how the person or thing moves and/or acts: fast/slow, push, pull, turn, roll, drop, fall, write, talk, tell, sing, 

This handout on the Descriptive Teaching Model includes some examples of how this could be implemented in a couple of different curriculum areas.

This post titled Fringe Makes Me Cringe on the blog voices4all shares a mother's story of changing from referential to a descriptive model.

I have just recently experienced the power of using a descriptive language approach with my son. He has an extremely limited number of spoken words and we have tried many different communication supports through the years. Last summer we started using a system that is Core Word based as well as focusing on Aided Language Input and using descriptive language both for his school-based learning and throughout the day. At first, much of what we did was modeling but after a few months, he started using his talk to describe things rather than just to name things. At one point, he wanted to go to a hotel and the word hotel was not on his talker so he proceeded to use words that describe the things we do or see in a hotel - car, sleep, swim, curtains, eat...etc. When I still didn't understand, he went and got a suitcase to try to help with his explanation.  The picture included here is him when he finally got to go to the hotel.

At one point we also started sitting down each night with his talker and talking about what we did that day. Sometimes there were pictures on his iPad that helped and sometimes we just had to go with what we knew. We used a descriptive approach when we did this so there were a lot of things that were happening right within his day that we were wrapping descriptive language around.  There was actually a stretch of time when he was asking to add words to his talker that were tied to things we were doing so that he could use them when we talked that evening (rather than trying to go back and describe it).

These are just a couple of examples of how we have used this approach beyond just classroom application. He has used it to describe quite a few other things that are meaningful to him as they have come up and as he started to do this around things that were personally meaningful to him, he also started engaging in descriptive language related to school content so we could move on from just the input stage and start having some back and forth interactions. The great thing about the approach is that we are able to use the context of what is going on in the classroom to meet him where he is at in regards to language development. We can focus on expanding answers to just one more word to get a bit more specific answer.

Friday, June 26, 2015

CCN Alphabet - Sharing What I'm Learning About Supporting Students with Complex Communication Needs


It's hard to believe another year has come and gone. There were many times this year when I sat down to write a blog post but then the words just didn't seem to come.  It wasn't that there was nothing to write, but perhaps more than so many of the things that I have been thinking about for the last few years starting to become consolidated in practice and in the time I wanted more to step back and experience it and let it evolve rather than to wrap too many words around it. 

When I adopted my son 16 years ago, I knew that we were beginning a "special needs journey" but I did not know that we were also beginning a "complex communication needs journey". In those early days, I imagined a very different life for both him and I as his childhood years have unfolded.  

When I made the decision to move from "general" to "special" education 9 years ago, I also knew I was on a new journey, but, again, I was unable to imagine what parts of that journey would become my North Star. 

There are events that stand out now looking back but more so then the events, what stands out is a deepening awareness of how our knowledge evolves; How the way we see things changes as what we know and experience changes.  

Up until five years ago, the work I was doing around communication with students with complex communication needs was pretty restricted to things like sign language, PECs, eye-gaze boards with only single layers, yes/no choices...etc. The work we were doing around "literacy" with this population was also restricted mostly to "literacy experiences" but we dabbled a bit in sight word reading programs. The school experiences of the students that I worked with were also restricted a majority of the time by the walls of our self-contained classroom. 

The journey began with feelings of discomfort that I could not put my finger on, and then opportunities began to open up - a 2-day PODD training by Linda Burkhart, Literacy and AAC courses by Karen Erickson and David Koppenhaver, Communication and Literacy workshops by Caroline Musslewhite, taking my Masters in Inclusive Education and Neuroscience, support from some to educational practice away from a self-contained classroom and toward supported inclusion in age-appropriate general education settings, Alberta's Literacy for All initiatives...etc. Through it all, the awareness of importance of literacy, language, and communication in reference to a person's autonomy and quality of life has grown.  

In the middle of this growing awareness are explorations on how to make it all happen...which leads to more learning and more awareness. We have, by no stretch of the imagine, figured it all out. I'm pretty sure we have still just only seen the very tip of the iceberg.  But we are also making progress and learning a few things along the way.

This summer, I want to do a series of blog posts and share what I (as a result of many interactions with students, parents and professionals) have been learning and thinking about supporting students with complex communication needs (CCN).  I thought to frame it in an alphabet style and do 26 posts - one for each letter of the alphabet - sharing these thoughts.  Tomorrow, I will start with A...

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Links to Completed Posts in this Series
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B is for Behaviour
C is for Communication Process
D is for Descriptive Language
E is for Engagement
F is for Facilitators
G is for Generative Language
H is for "Helping"
I is for Inclusion
J is for "Just in Time"
K is for Keyboard
L is for Language of Control
M is for Motivation
N is for Narrative Development
O is for Opportunities
P is for Play
Q is for Qualified (Presume Competence)
R is for Robust Language System
S is for Self-Determination
T is for Talk About
U is for Urgency
V is for Visual Supports
W is for Wellness
X is for Fix (Communication Repair)
Y is for Yelling
Z is for Zone of Proximal Development
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Monday, August 11, 2014

Coming Full Circle: Reflecting on Camp ALEC

It has been a week now since I have been home from a ten-day trip to Philadelphia to be a part of Camp ALEC. I am still challenged to put in to words a reflection of the camp. I'm sure it is going to take more than one post when all is said and done.

Just to give a big of background... Tina Moreno, one of the two ladies that made this camp happen, explained the camp perfectly in her blog post yesterday:
This was the first Camp ALEC and the first camp of its kind offered in the United States. Together, we gathered 15 campers and 14 educators, speech-language pathologists and school administrators from the U.S. and Canada at Variety Club Camp and Developmental Center in Norristown, PA for a week of reading and writing assessment and interventions–plus a typical summer camp experience.  Each camper received a total of 17.5 hours of individual and small group assessment and instruction throughout the week.  The goals of Camp ALEC included building the skills of the adults who participated and determining how the campers... can be supported in further developing their reading and writing skills during the coming school year.  At the conclusion of camp, parents had an opportunity to have a conference with their child’s educator,  as well as Karen and David, and left with a report detailing the results of their informal reading and writing assessment and instructional recommendations.  Our hope is that parents will share those recommendations with teachers so that they can implement evidence-based instructional strategies that will ensure greater progress in school. (http://voices4all.wordpress.com/2014/08/11/what-i-learned-from-camp/)
In June 2011, I attended the kick off to the Literacy for All community of practice in Alberta. It was the first time I was exposed to the Whole to Part framework and to the resource  Children with Disabilities: Reading and Writing the Four Blocks Way. In August 2011, Linda Burkhart came to our area and did a two-day PODD (Pragmatic Organizational Dynamic Display) workshop.  The combination of being a part of this community of practice and gaining a deeper understanding of language and communication through Linda Burkhart's workshop and the fact that we were trying to figure out how to create more inclusive programs for students with complex communication needs in our division projected me down a path of exploration related to language/communication, literacy, inclusion and empowerment. 

In May of 2012, I flew to Toronto and attended a week long intensive Litearcy in AAC course taught by from Karen Erickson and David Koppenhaver. Although I learned much about literacy during this camp, the context that I was in the middle of in regards to being in the beginning stages of a Masters program in Inclusive Education and Neuroscience, our changing focus for the students that I had been teaching in a self-contained classroom and this immersion in information about language/communication and literacy, drove me to start thinking more deeply about learning more generally rather than just focusing in on all the amazing literacy and communication content.


It was becoming clear to me that although I had been teaching for almost 20 years at this point, I had never really taken the time to time to define or understand learning. I had thought more about the content I was trying to pour in to students then designing and facilitating exploration and discovery. It was actually only as I made the shift from general to special education that I started to see the difference between training/teaching and learning.

Sadly, this is probably because in special education we may have gotten trapped in believing that learning is rigidly linear, that learning with accommodation is not "real learning", that people with intellectual disabilities learn differently than those without (i.e. need everything broken down in to small pieces), and/or that it is more important for people with intellectual disabilities be drilled through "life skills" programs than to learn curriculum-driven academics. Rather than focusing on the function of what is meant to be learned, we focus on the broken apart steps/skills and/or the content  and we conclude there is nothing that a student with an intellectual disability could get out of it. We don't recognize the opportunities that exist if we shift to focusing on function of what is happening in the learning experience. We want immediate tangible results so rather than engaging in the sometimes slow and frustrating process of finding ways to break down barriers to curriculum-driven learning, we fall back on a reductionist behaviour training approach and end up trapping these students in a world that will be hard to ever expand because expanding works inside-out rather than outside-in. 

In the middle of everything that I was learning and experiencing, the question of how we shift the paradigm and start thinking about learning from the inside out instead of the outside in for and with this population of students emerged. It seemed there were a million separate pieces to answer... that maybe I the answer would never be one that could be clearly articulated because it was just too complex.
Training is often a passive process and is rooted in compliance. It is often a one-size-fits-all process. In education we like to train because the result of training is behaviour or simple memorization and we can objectively measure behaviour and memorization. We also like to train because we view it as an efficient process as we can "reach" a whole bunch of students at once. Training is an outside-in process. It is driven by those doing the training. Training results in putting our effort and resources in to managing and directing other human beings. The realm of training is limited... particularly to those who need support or accommodation to engage in the process of learning. 

Learning is about developing and empowering people from the inside out. Learning is about the individual... but it also about the collective as learning is social and interactive process. There is a recognition that each person will learn something different from an experience because each person comes to the experience with their own unique background. Learning is messy. Learning can be noisy and chaotic. Learning can be frustrating. Learning might not result in a final product. We ultimately cannot actual control other people's learning. We can only create the conditions for it and support it. Learning is about design. Learning results in putting our energy and resources in to design and support and the growing of other human beings as individuals. The realm of learning is unlimited as long as one has the facilitated freedom and the literacy and communication skills that are critical to the learning process.

I have much to write about from this past week at Camp ALEC but I'm starting with the fact that this feeling of upset... of cognitive dissonance... of all of this being too big to manage or do anything about or to articulate... that I have been feeling since I sat in that first meeting for the Literacy for All Community of Practice three years ago is starting to subside to a manageable level. I am beginning to see the path through the forest. This camp allowed me to work directly with kids who were developing (or had developed) strong language/communication and literacy skills. I could clearly see how this is a starting point for all the other things that are part of the forest. These kids were empowered and driven and full of life... and the life they were full of was very much their own. Their futures were not limited to what others had decided for them even though they relied on others for care-related needs.

At the end of the week I was sitting at dinner with one of the campers and the same lady (Tina) whose blog I linked to above. This camper had known Tina for years.  Tina had a son who was attending the camp who was close in age to this camper.  This young lady was explaining to Tina how she needed to step back and let her son be independent of her at camp.  She stated that he is a young man and he needs to be able to make decisions and function on his own without his mother's interference.  I was able to get to know Tina's son through the week as he was one of the campers and she clearly did not need this lecture.  Her son was an amazing and independent young man.  This conversation was more one that this young lady needed so that she could consolidate the empowering experience she had during her first whole week on her own.  She said it so passionately. She clearly was not just reciting rhetoric.  She knew this as a result of consolidating her personal experiences.  This ability to articulate thoughts like these comes from focusing on authentic language and literacy learning.  It is not just about the words that are coming out... It is about the fact that she would be able to expand on and defend what she is saying because she clearly understood and owned it. She had made her own personal connections rather than just reciting what had been dumped in to her.

This past May I completed my Capstone project for my Masters program.  At the time I was trying to answer the question of how we create cohesive and continuous inclusive programs for students with complex needs.  When I was done writing the paper I mostly just felt frustrated.  I felt that, although there was a lot of great content in the paper, it was still too big and too scattered and too overwhelming to figure how to move all of the theory in the paper in to practice in reality.  I could not see the path in the forest... it was all still trees and underbrush. 

If I were to write the paper now, after spending this time at Camp ALEC, I would narrow it down to focusing in on building solid communication and literacy learning opportunities because it is now clear to me that everything else that was in the paper will expands out from there for these students.  If we get that piece right with them, they will have the skills and understanding needed to make the other pieces right themselves.

It amazes me how dynamic and non-linear (and exciting) the process of learning and understanding can be. The experience of these past three years has helped me to more deeply understand how what we key in to and process and integrate at any given time is extremely dependent on the background that we bring to learning.  Each time we are exposed to new ideas we will see something different because we come to them from a different starting point than the last time.

Sunday, June 23, 2013

Inclusion Flowchart


Sometimes I think we make "inclusion" far to complicated.  But the flip side of that is that other times I feel we oversimplify it.  Inclusion is about recognizing that all students need flexible structures so that each is able learn.  We can't make blanket statements about student ability and then just "put them" in a specific place.  We need to be continually evaluating and responding to both their learning and ours.  We need to recognize learning as a dynamic social process.  For those who do not fit in the box, we need to be researching and trying other possible ways to enhance their learning.  Concepts of Universal Design for Learning (UDL) and Response to Intervention and Instruction (RTII) need to be approriately and flexibly applied.  Sue Buckley does an excellent job of speaking to this in her post "Every School Should be Inclusive". 

Tuesday, May 7, 2013

The Butterfly Circus

In the book Neurodiversity in the Classroom: Strength-Based Strategies to Help Students with Special Needs Succeed in School and Life Thomas Armstrong asks us to reimagine disability as a natural part of the human condition.  His message is not unlike so many others.  The first time I came across the view was probably shortly after I adopted my son and discovered Kathy Snow's book and website Diability is Natural.  Thomas Armstrong takes the idea of disability being a natural way of being a step futher and speaks to the celebration of the diversity of the human person.  He digs in to strengths that are often associated with specific "disability" labels and talks to how we should be capitalizing and focusing on these strenghts rather than focusing on the deficit inherit to a given disability. 
 
This stuff speaks to my heart.  We all have strengths in this world and I believe it is our job as educators to work with students to discover and nurture these gifts and strengths.  As we come to understand gifts and strengths we can co-create a path to excellence with our students.  When it comes to the students on my caseload, strengths give us a window in to the things we can do to break down barriers to social, academic and routine participation and learning.  If we don't profile a student's strengths, we will be less equipped to support that student's learning.
 
But it is not our job to do it for our students.  It is our job to help our students discover it in themselves.  And sometimes that means stepping back.  In the end, our job is not unlike the folks that run the butterfly circus in the following video.  I often try to explain the difference between supporting and helping and can't quite find the words.  This video speaks very eloquently to this idea. 
 
 
 

Sunday, May 20, 2012

COACH3: Choosing Outcomes & Accommodations for Children: A Guide to Educatoinal Planning for Students with Disabilities


Planning for the 2012-13 school year is in full swing as we are looking to move all of the students that I have on my caseload to their age appropriate schools this fall.  I will continue to oversee their programs at each of the three schools.  There is still a lot in the air around what things will look like exactly (we have ideas but because they are new we will need to be flexible and responsive to situations and students).

One of the shifts we are trying to make is for the starting point to be what the individualized goals are for these students and then to build their individual programs, including where each aspect of those programs will be delivered, based on that.  This is really the way it should be done but somehow we have gotten caught up in putting them in to a program based on a diagnosis or perception and then building a program that ensures they fit in to the program as it exists.  It was never intentional. I think we just sometimes get stuck in things because they seem to be more efficient.  But really we should be looking for efficient and effective and sometimes that means sacrificing a little bit of the efficient.

Here is where the COACH3 model comes in.  Where are starting with planning individual programs for next year is to work through the COACH3 (Giangreco, Coloninger & Iverson) with parents so that we can discover what the learning priorities they have for their children are. It will be interesting to know if they match with what I think they are.  It will also be helpful as we continue to plan for what their programs will look like next year in their new settings. 

The family interview and figuring out what the priority learning outcomes in that meeting is just the first part of the process.  The next thing we do is look at supplemental outcomes based on what other team members feel is important and then look at the general supports that will be in place.  This information is then used to create annual goals, short term objectives and a program-at-a-glance.  Ultimately all of this is used to create the student's IEP.

I'm excited to try the model as I looked long and hard at both this one and "The Beyond Access Model".  In the end I decided on this because it is a little bit more laid out and right now we kind of need that.  As we continue to move forward we will continue to evaluate what the best tool to plan for programming for these students is.

Sunday, January 22, 2012

Raymond's Room: Ending the Segregation of People with Disablities by Dale Dileo

There are so many people in this world who are passionate about ending segregation of people based on disabilities.  It is always wonderful to read stories of people who dedicate their lives to this very worthy cause.

The book starts with a story of the author working in an institution and the horrid conditions that one of the people there lived under.  It describes Raymond's room and how he was viewed as being so dangerous that he needed to be locked away in a room living in conditions that we cannot imagine.  Dale Dileo moved from this experience to dedicating his life to changing "institutional thinking".  He has seen much progress but the book challenges readers to recognize that although much progress has been made, there is still a lot of "institutional thinking" in the world.

A few parts of the book that really resonated with me include:

Group Mindset: I like the approach to thinking not only about institutionalization but also institutional thinking.  When we group people together based on a disability label we do many things.  The book pointed out a couple that we need to be very aware of.  First, other people will notice what is common to the group of people - so they notice the disability as opposed to noticing the person.  For people to be seen as individuals they need to stand as individuals.  If we put someone with the disability in the middle of people without disabilities, people again notice what is common to everyone - which is that they are human.  The second point that is made about group mindset is that when there is a group of people there is far less social interaction with others then when people are on their own.  Expectations change when there is a group.  Getting rid of institutions is not enough.  We also need to get rid of institutional thinking. 

Pre-requisite Skills: I really liked the analogy made in this book about being required to have a certain set of skills before a person with a disability is allowed to do something in the real world. People with disabilities are expected to learn skills in simulated environments while others are given the opportunity to learn these same things in the middle of real life situations.  Perhaps what hit home with me the most was when the author spoke of the time when we move away from home for the first time.  Did we really have all the pre-requisite skills needed for living on our own?  I know I didn't.  I phoned home to find out how to do my laundry.  I had to learn to budget by getting to the end of the month and realizing there was more month left than there was money.  I learned that I had to pay my bills on time when I lost phone access because I didn't stay on top of things.  I gained skills through the experience and through the need.  This is tied in to the concept of "dignity of risk" and something that all people have the right to.

Real Jobs: This is one that is near and dear to my heart as it is important to me that Mikey (my son) eventually have a real job rather than work work in a sheltered environment or spend his days in a "day program".  One key point from this section was related to thinking about the context of a job.  There is one story about a man who has the "behaviours" of swearing and spitting and they are worried about placing him in a job.  He ends up getting a job at a shipping dock and succeeds there partially because many of the other people who work there spit and swear.  In this context, it is not a "behaviour".  The other thing I found important in this section was the discussion around the need to fit in to the social fabric of a work environment and how someone who is supporting the employment of a person with a disability should focus on helping them to fit in rather than breaking down the tasks in the work environment.  Once a person fits in to the work environment, those around them tell them the tricks of the trade.  I like this approach as it mirrors what I feel is the most important first step with my students.  We need to get them looking to and interacting with other students to figure out what to do next as opposed to relying on adults for that.

Lots of other great things in the book. Well worth the read and lots that motivates and inspires related to ending of institutional thinking.  I think it also helps frame the idea of looking at individual needs and desires when planning.  This means there may be some things that are done individually - but that is not the same as "in isolation".

Thursday, December 29, 2011

Great Article: The Importance of Taking a Strength Based Perspective by Mary Beth Hewitt

As my role moves from being in my own classroom to supporting my students in other classrooms I am finding that I need to step back and analyze things that I do and believe in so that it can be projected in to my students new environments.  In a self-contained classroom it is easy to take a strength based approach because we do not have some of the same pressures that exist in a classroom full of 30 students who all need to get through the same curriculum in the same amount of time.  It is making me stop and think. I found this great article on the CPI website and wanted to pass it on.

Link to Article: The Importance of Taking a Strength Based Perspective by Mary Beth Hewitt

For some reason the article is cut off at the end and the "Eight Behaviours of the Strengths Based Teacher" table is not included.  It's a great table that lists the eight behaviours as well as examples of framing things from a flaw and strength focus.  The 8 behaviours are:
  1. Focus on what the student can do.
  2. Make realistic appraisals and avoid the use of overgeneralizations.
  3. Look for and give credit for evidence of progress. Don't minimize or discount the positive.
  4. Positively reframe behaviour.
  5. Look for the "silver lining" in the students behaviour and start there.
  6. Work with the factors that you can control.
  7. Look at the whole picture.  It is as important to focus on factors that are present when the misbehaviour does not occur as when it does.
  8. Be aware of the labels that you use and the projections that you make.