Alberta Summer 2015 Course on Supporting Literacy for Students with Low Incidence Disabilities

Over four years ago, I received the book Children with Disabilities: Reading and Writing the Four Blocks Way as one of the resources for a provincial community of practice I was involved in. The book was the answer to this nagging feeling that there had to be a way to think about "real literacy" for the students that I was working with. So that year, with PODD training behind us and this book in hand, I began the process of shifting toward comprehensive literacy instruction with the students that I work with. Toward the end of that year, I traveled to Toronto to go to a week long course with the authors of the book, Karen Erickson and David Koppenhaver. I returned home and began the process of implementing  what I learned, but the fact that we were also shifting from self-contained to inclusive practices meant that there were times in the next couple of years where decisions about priorities had to be made. After two years of experimenting, I felt we were in a much better place to take a more systematic approach to things and so, last summer, I went to learn from Karen Erickson and David Koppenhaver again at Camp ALEC. I returned from that camp not only fired up about literacy, but also fired up about core vocabulary and ensuring that students have a language system that allows them to more deeply engage in literacy learning and life in general.

As this past year ended, I was feeling like we were now on the right path and then the opportunity to see Karen and David again, this time right here in Alberta, presented itself.  I have just returned now from spending another week learning from them and am once again excited to put what I've learned in to practice. I am sure that it will take me some time to fully process all that I've learned but for now I am just going to share my thoughts around the things that most resonated with me at this point immediately following the course.

It's All About Language and the Connecting Arrows
Last summer, when I was able to interact with proficient AAC users, I came to better understand the need to focus on language and communication as a larger part of the picture than what we had been doing. Last week the diagram that is presented very early on in each course and speaks to how speaking (AAC), listening, reading and writing develop in interaction with each other with language permeating every aspect of learning spoke more loudly to me. It was interesting that the statement was made that as time goes on, there is an increased understanding that "the arrows" are what is important about this diagram because that perfectly reflects what I've been discovering over the last few years of trying to put this in to practice. I also find it interesting how language sits as the heart of what thinking and learning are and that I was well in to my teaching career before I ever thought intentionally about language.

A Deeper Understanding of Emergent Literacy
The first course that I took was focused on conventional literacy and so when I returned, I started immediately to try to implement the conventional components with students who were actually at the emergent level. Through the next couple of years, I researched and modified to try to create programs that were more geared toward emergent learners.

Last summer, at Camp ALEC, it became much clearer to me what emergent and conventional programs should look like.  I have a couple of students though who would appear to be "conventional" because they know all of their letters and a whole lot of sight words and can even sometimes answer rote questions from 1970's reading programs. The problem is, these students do not engage in generative writing or just talking about books during shared reading. They are literally lost for words in these situations... either because they are just coming to be able to use their communication system in a generative way or because they have a history that doesn't include any exposure to this type of generative approach to learning.

The statement made this year that emergent literacy is connected to opportunities to actively engage and construct meaning over time with print really resonated with me and confirmed much of what I had been thinking through this past year as I backed up with some of these students to working on the emergent, rather than the conventional, literacy "to do every day" list that was shared during both this course and last year at Camp ALEC. I walked away with more clarity around the idea that for students at the emergent literacy level it is about us creating these opportunities for engagement so that all the foundational pieces can be in place before we focus in on the conventional level.

Universal Design for Learning and Students with Significant Disabilities
I have posted quite a bit in the past about UDL so really appreciated that there was time dedicated to speaking about what it means to  apply UDL concepts to planning for instruction for students who have significant disabilities. Ultimately, applying UDL concepts to this population of students works against the traditional behavioural approach that has been taken in special education and requires a paradigm shift.

UDL is founded on the idea of learner variability and an understanding that the learning process engages three different brain networks including the recognition network (the what of learning), the strategic network (the how of learning) and the affective network (the why of learning). To design learning that addresses learner variability means ensuring that there are multiple means of representation (recognition network), multiple means of expression (strategic network) and multiple means of engagement (affective network). Traditional approaches to teaching students with disabilities is not rooted in a multiple means approach as it is often about rote, repetitive learning of the single task that is currently being "mastered". This approach looks at the what of learning in isolation of the how and the why and often involves some type of extrinsic way of motivating students. The shift to thinking about repetition with variety to ensure multiple means of representation and expression and to focusing on engaging students by focusing on the functions of literacy can be a pretty big paradigm shift when looking at how education should work for this population of students.

Ultimately, I was just thrilled to be sitting in a room where UDL was being discussed with explicit focus on students who seem to often to be left out of the UDL discussion.

Supporting Communication
This is one that I came back from Camp ALEC last summer understanding much more deeply but the work that we did with core boards during the workshop last week got me even more excited. David and Karen have been doing work around developing core vocabulary boards that will be available to everyone that can be used as a bridge for those students who need a way to communicate but do not have a comprehensive language system. For a better explanation of this, check out the module on core vocabulary from the DLM Professional Development website. During the week, we used the core boards a few times to engage in different literacy activities and it was great to see just how much conversation could be generated with just the first 40 words. The bottom line is that being able to engage in conversation during literacy activities does not have to be restricted to answering yes/no to lists that have been generated. I went in having a pretty good feel for the power of core but being able to engage with it during the week has me even more excited about it as I could see how it can be used in creating back and forth interactions and in developing much needed skills related to being strategic with the words that are available.

One other important statement that was made during the stretch of time that we were playing with core in one of the activities is that it positions us as communication partners to really support the student and ask questions to understand what they are trying to say. This moves us away from the idea of not responding until something is said in some predefined format and toward authentic and meaningful communication.

Dynamic Learning Maps Professional Development Website 
I wanted to end this post by including a piece that I was very aware of before taking this course but came to better understand how it can be used in implementation during the course. So much of the information that David and Karen present at these workshops is now available to anyone online for free through the Dynamic Learning Maps Professional Development website. What a goldmine this is for people who were in the position I was in four years ago - feeling like there was so much more to what literacy instruction could be for these students but not really confident about how to make that happen. Now, all it takes is to go to the Dynamic Learning Maps Professional Development website and begin working through the modules they have there. The great thing from the implementation standpoint is that a person can work through the modules on their own or use the facilitate module resources to work in a group through the modules. This also opens up opportunities to go back and relearn the things that have been presented or have something to pass on to those who want to learn more about any component of a program that we are trying to implement.  It's such an amazing resource!

CCN Alphabet - Sharing What I'm Learning About Supporting Students with Complex Communication Needs

It's hard to believe another year has come and gone. There were many times this year when I sat down to write a blog post but then the words just didn't seem to come.  It wasn't that there was nothing to write, but perhaps more than so many of the things that I have been thinking about for the last few years starting to become consolidated in practice and in the time I wanted more to step back and experience it and let it evolve rather than to wrap too many words around it. 

When I adopted my son 16 years ago, I knew that we were beginning a "special needs journey" but I did not know that we were also beginning a "complex communication needs journey". In those early days, I imagined a very different life for both him and I as his childhood years have unfolded.  

When I made the decision to move from "general" to "special" education 9 years ago, I also knew I was on a new journey, but, again, I was unable to imagine what parts of that journey would become my North Star. 

There are events that stand out now looking back but more so then the events, what stands out is a deepening awareness of how our knowledge evolves; How the way we see things changes as what we know and experience changes.  

Up until five years ago, the work I was doing around communication with students with complex communication needs was pretty restricted to things like sign language, PECs, eye-gaze boards with only single layers, yes/no choices...etc. The work we were doing around "literacy" with this population was also restricted mostly to "literacy experiences" but we dabbled a bit in sight word reading programs. The school experiences of the students that I worked with were also restricted a majority of the time by the walls of our self-contained classroom. 

The journey began with feelings of discomfort that I could not put my finger on, and then opportunities began to open up - a 2-day PODD training by Linda Burkhart, Literacy and AAC courses by Karen Erickson and David Koppenhaver, Communication and Literacy workshops by Caroline Musslewhite, taking my Masters in Inclusive Education and Neuroscience, support from some to educational practice away from a self-contained classroom and toward supported inclusion in age-appropriate general education settings, Alberta's Literacy for All initiatives...etc. Through it all, the awareness of importance of literacy, language, and communication in reference to a person's autonomy and quality of life has grown.  

In the middle of this growing awareness are explorations on how to make it all happen...which leads to more learning and more awareness. We have, by no stretch of the imagine, figured it all out. I'm pretty sure we have still just only seen the very tip of the iceberg.  But we are also making progress and learning a few things along the way.

This summer, I want to do a series of blog posts and share what I (as a result of many interactions with students, parents and professionals) have been learning and thinking about supporting students with complex communication needs (CCN).  I thought to frame it in an alphabet style and do 26 posts - one for each letter of the alphabet - sharing these thoughts.  Tomorrow, I will start with A...

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Links to Completed Posts in this Series
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A is for Aided Language Stimulation 

B is for Behaviour
C is for Communication Process
D is for Descriptive Language
E is for Engagement
F is for Facilitators
G is for Generative Language
H is for "Helping"
I is for Inclusion
J is for "Just in Time"
K is for Keyboard
L is for Language of Control
M is for Motivation
N is for Narrative Development
O is for Opportunities
P is for Play
Q is for Qualified (Presume Competence)
R is for Robust Language System
S is for Self-Determination
T is for Talk About
U is for Urgency
V is for Visual Supports
W is for Wellness
X is for Fix (Communication Repair)
Y is for Yelling
Z is for Zone of Proximal Development
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Coming Full Circle: Reflecting on Camp ALEC

It has been a week now since I have been home from a ten-day trip to Philadelphia to be a part of Camp ALEC. I am still challenged to put in to words a reflection of the camp. I'm sure it is going to take more than one post when all is said and done.

Just to give a big of background... Tina Moreno, one of the two ladies that made this camp happen, explained the camp perfectly in her blog post yesterday:

This was the first Camp ALEC and the first camp of its kind offered in the United States. Together, we gathered 15 campers and 14 educators, speech-language pathologists and school administrators from the U.S. and Canada at Variety Club Camp and Developmental Center in Norristown, PA for a week of reading and writing assessment and interventions–plus a typical summer camp experience.  Each camper received a total of 17.5 hours of individual and small group assessment and instruction throughout the week.  The goals of Camp ALEC included building the skills of the adults who participated and determining how the campers... can be supported in further developing their reading and writing skills during the coming school year.  At the conclusion of camp, parents had an opportunity to have a conference with their child’s educator,  as well as Karen and David, and left with a report detailing the results of their informal reading and writing assessment and instructional recommendations.  Our hope is that parents will share those recommendations with teachers so that they can implement evidence-based instructional strategies that will ensure greater progress in school. (http://voices4all.wordpress.com/2014/08/11/what-i-learned-from-camp/)

In June 2011, I attended the kick off to the Literacy for All community of practice in Alberta. It was the first time I was exposed to the Whole to Part framework and to the resource  Children with Disabilities: Reading and Writing the Four Blocks Way. In August 2011, Linda Burkhart came to our area and did a two-day PODD (Pragmatic Organizational Dynamic Display) workshop.  The combination of being a part of this community of practice and gaining a deeper understanding of language and communication through Linda Burkhart's workshop and the fact that we were trying to figure out how to create more inclusive programs for students with complex communication needs in our division projected me down a path of exploration related to language/communication, literacy, inclusion and empowerment. 

In May of 2012, I flew to Toronto and attended a week long intensive Litearcy in AAC course taught by from Karen Erickson and David Koppenhaver. Although I learned much about literacy during this camp, the context that I was in the middle of in regards to being in the beginning stages of a Masters program in Inclusive Education and Neuroscience, our changing focus for the students that I had been teaching in a self-contained classroom and this immersion in information about language/communication and literacy, drove me to start thinking more deeply about learning more generally rather than just focusing in on all the amazing literacy and communication content.

It was becoming clear to me that although I had been teaching for almost 20 years at this point, I had never really taken the time to time to define or understand learning. I had thought more about the content I was trying to pour in to students then designing and facilitating exploration and discovery. It was actually only as I made the shift from general to special education that I started to see the difference between training/teaching and learning.

Sadly, this is probably because in special education we may have gotten trapped in believing that learning is rigidly linear, that learning with accommodation is not "real learning", that people with intellectual disabilities learn differently than those without (i.e. need everything broken down in to small pieces), and/or that it is more important for people with intellectual disabilities be drilled through "life skills" programs than to learn curriculum-driven academics. Rather than focusing on the function of what is meant to be learned, we focus on the broken apart steps/skills and/or the content  and we conclude there is nothing that a student with an intellectual disability could get out of it. We don't recognize the opportunities that exist if we shift to focusing on function of what is happening in the learning experience. We want immediate tangible results so rather than engaging in the sometimes slow and frustrating process of finding ways to break down barriers to curriculum-driven learning, we fall back on a reductionist behaviour training approach and end up trapping these students in a world that will be hard to ever expand because expanding works inside-out rather than outside-in. 

In the middle of everything that I was learning and experiencing, the question of how we shift the paradigm and start thinking about learning from the inside out instead of the outside in for and with this population of students emerged. It seemed there were a million separate pieces to answer... that maybe I the answer would never be one that could be clearly articulated because it was just too complex.

Training is often a passive process and is rooted in compliance. It is often a one-size-fits-all process. In education we like to train because the result of training is behaviour or simple memorization and we can objectively measure behaviour and memorization. We also like to train because we view it as an efficient process as we can "reach" a whole bunch of students at once. Training is an outside-in process. It is driven by those doing the training. Training results in putting our effort and resources in to managing and directing other human beings. The realm of training is limited... particularly to those who need support or accommodation to engage in the process of learning. 

Learning is about developing and empowering people from the inside out. Learning is about the individual... but it also about the collective as learning is social and interactive process. There is a recognition that each person will learn something different from an experience because each person comes to the experience with their own unique background. Learning is messy. Learning can be noisy and chaotic. Learning can be frustrating. Learning might not result in a final product. We ultimately cannot actual control other people's learning. We can only create the conditions for it and support it. Learning is about design. Learning results in putting our energy and resources in to design and support and the growing of other human beings as individuals. The realm of learning is unlimited as long as one has the facilitated freedom and the literacy and communication skills that are critical to the learning process.

I have much to write about from this past week at Camp ALEC but I'm starting with the fact that this feeling of upset... of cognitive dissonance... of all of this being too big to manage or do anything about or to articulate... that I have been feeling since I sat in that first meeting for the Literacy for All Community of Practice three years ago is starting to subside to a manageable level. I am beginning to see the path through the forest. This camp allowed me to work directly with kids who were developing (or had developed) strong language/communication and literacy skills. I could clearly see how this is a starting point for all the other things that are part of the forest. These kids were empowered and driven and full of life... and the life they were full of was very much their own. Their futures were not limited to what others had decided for them even though they relied on others for care-related needs.

At the end of the week I was sitting at dinner with one of the campers and the same lady (Tina) whose blog I linked to above. This camper had known Tina for years.  Tina had a son who was attending the camp who was close in age to this camper.  This young lady was explaining to Tina how she needed to step back and let her son be independent of her at camp.  She stated that he is a young man and he needs to be able to make decisions and function on his own without his mother's interference.  I was able to get to know Tina's son through the week as he was one of the campers and she clearly did not need this lecture.  Her son was an amazing and independent young man.  This conversation was more one that this young lady needed so that she could consolidate the empowering experience she had during her first whole week on her own.  She said it so passionately. She clearly was not just reciting rhetoric.  She knew this as a result of consolidating her personal experiences.  This ability to articulate thoughts like these comes from focusing on authentic language and literacy learning.  It is not just about the words that are coming out... It is about the fact that she would be able to expand on and defend what she is saying because she clearly understood and owned it. She had made her own personal connections rather than just reciting what had been dumped in to her.

This past May I completed my Capstone project for my Masters program.  At the time I was trying to answer the question of how we create cohesive and continuous inclusive programs for students with complex needs.  When I was done writing the paper I mostly just felt frustrated.  I felt that, although there was a lot of great content in the paper, it was still too big and too scattered and too overwhelming to figure how to move all of the theory in the paper in to practice in reality.  I could not see the path in the forest... it was all still trees and underbrush. 

If I were to write the paper now, after spending this time at Camp ALEC, I would narrow it down to focusing in on building solid communication and literacy learning opportunities because it is now clear to me that everything else that was in the paper will expands out from there for these students.  If we get that piece right with them, they will have the skills and understanding needed to make the other pieces right themselves.

It amazes me how dynamic and non-linear (and exciting) the process of learning and understanding can be. The experience of these past three years has helped me to more deeply understand how what we key in to and process and integrate at any given time is extremely dependent on the background that we bring to learning.  Each time we are exposed to new ideas we will see something different because we come to them from a different starting point than the last time.

Literacy in Augmentative and Alternative Communication

This past week I traveled to Toronto for a "Literacy in AAC" course that was delivered by Karen Erikson and David Koppenhaver (the authors of the book "Children with Disabilities: Reading and Writing the Four-Blocks Way").  The focus of the course was on developing literacy skills in students who have complex communication needs. 

I do believe in literacy learning for all students but this course challenged me to further redefine what "literacy learning" is for the students that I teach.  I have been moving towards an understanding of generative reading and writing over the past couple of years but coming to understand that and actually having a plan of action around how to make that happen are two different things.  I came out of this course feeling like there is now an action plan and that plan is rooted in ensuring that the students that I am responsible for have a comprehensive literacy program that includes interactions related to each of the four blocks of literacy during the course of their days.  For the elementary and junior high students that I have this will mean using curriculum overlapping as they will be in inclusive settings for a large portion of their day.  For the elements that are more important to do directly, we will do a pull out intervention time to work on this.  For the high school students that I have I am looking at creating a literacy class that is equivalent in time to a five-credit course as well as finding another time in the day for students to do self-selected reading.

With some of my students we will be starting at the beginning and for others we will be building on the emergent skills that they already have.  Being part of the Alberta Education "Literacy for All" Pilot project this year has put us in a situation where we have built some of the foundation that we can build on with this new information.  

I would have a hard time summarizing all that I have learned so am hoping to do it over time in reference to what we learn as we implement different aspects.  Where we start is to rethink the need for exploration and interaction without limits related to reading and writing for all of the students that I teach.  So that means using alternate pencils to "write" in the same way that preschool students "write" (i.e. scribble a bunch of letter like figures) without correcting or trying to direct - but rather just naming letters and exposing the student to purposes for writing.  A couple neat suggestions around finding purposes for writing included using remnant books (which I have tried using in the past to create opportunities for communication) where everyone in the students life adds pictures and items to the book related to some thing that happened in their life.  Whomever adds the picture and item also adds a sticky note with a brief description of what it is about.  Then when it is time to write, the student picks which item in his/her writing book that he/she wants to write about and then he/she writes using an alternate pencil.  Here is where what we would have traditionally done needs to be rethought.  Instead of showing the student how to use the alternate pencil to write the words that you want to write about the the thing that he/she has picked to write about, you allow the student to just write - put down whatever letters he or she says he/she wants to put down when writing and you talk to them about their writing - in the same way that you would look at your toddlers picture with scribbles under it and know that is his/her writing at that time.  They did say that it is okay to to pull out one letter and write a word related to the topic but to not do it in a way that corrects and to not take away or direct their writing at this point.  As students are exposed to a comprehensive literacy program, their writing evolves as a result of the interaction of the components of the program.  A second idea was to put "captions" on pictures - again not correcting or directing but allowing for exploration and interaction.  It is a bit of a shift.  I'm excited to get started.  

This is obviously only a small piece.  As I start to figure out how to take all of this stuff that is spinning around in my head and put it in to action I am sure I will be writing more.